It has been over a year since I had to take steroids in any form other than IV. Last week I stared a new regime for my chemo. I have spent months feeling like I was just treading water...not actively battling the cancer...just holding up my arms keeping it at bay. This new regime is me actively battling that cancer. I am back on the front lone treatment so I am back on oral steroids. Day before, day of, and day after treatment...I get to take 8mg of dexamethasone 2x a day. Let me just say I HATE steroids. They upset my stomach....I've been told that they can't upset my stomach...because I am taking them to control nausea...but the steroids stop the crappy stomach feeling goes with it. They also make me hungry as hell. I mean constantly eating for 3 days hungry. Funny thing is...I feel good to be back on the front line. This way when my daughter asks if I'm terminal...and I have to say yes...I can ad that I doing EVERYTHING I can do to kick cancers ass! When she sets a goal for me to still be around to see her first baby graduate from kindergarten, I can tell her that I will do my best and mean it. I may have to feel crummy because I the drugs...I may have to feel crummy because of the steroids...I may gain in fat the 40 pounds of fluid I have managed to get rid of because of the eating...but I am actively fighting.
That's all...I'm back..and I'm fighting,
To the moon and back,
Sarah
Showing posts with label taxotere. Show all posts
Showing posts with label taxotere. Show all posts
Wednesday, October 16, 2013
Steroids
Labels:
carboplatin,
chemo,
chemo update,
steroids,
taxotere,
The Bug,
tiny batman
Tuesday, November 1, 2011
Thankfulness...Day 87
Well it looks like today will be another day I chalk up to really looking for my thankfulness. I am determined to find something...but right now I'm struggling a bit.
I had surgery last week...laproscopic surgery to look for any residual cancer cells. I knew before I left the hospital that my doc had found cells. I think I posted about that last week. Today I had the appointment to talk about what we are going to do about the cells she found. I love how everything turns into a "we." What are "we" going to do. Last time I checked I am the one with this ginormous pain in the ass disease, but still I get to hear everyone say "we." That sounds so bratty. Oh well, I think I have earned at least a little bit of bratty. So "we" decided to cease with the taxotere...since it is OBVIOUSLY not doing diddly to the cells left all up in my abdomen. "We" are going to try a new drug called Topotecan. I actually like saying the name, because I love Topo Chico and I hope this drug Topote-CAN get the cancer out of my body!
This new drug is given once a week for three weeks and then I get a week off. The infusion shouldn't take very long and I think I might try having my infusion in the morning and then head into work for the rest of the day. I haven't tried that yet and the only side effect listed for this drug is fatigue. So getting to sleep in on the day of my treatment might be nice. I left my appointment felling a bit fragile. I was glad to have my mother with me and I was even happier to be picking Robin up from school on our way home. I am blessed enough to work in the same building where Robin goes to school, so I arrived at school right as the staff meeting for my school was finishing up. That was the last straw. I lost it. Seeing all those people who are praying for me...all my friends...my extended work family...was too much. I broke down...pros of losing it at work. I got about 15 amazing hugs...you know the ones...the ones that last at least 30 seconds...where the other person is sincerely trying to absorb some of the pain you are feeling. I got 15 of those. And there it is. I knew if I started typing I would stumble upon my thankfulness. I am thankful for whole body hugs...I think they did absorb some of the sad. They absorbed enough of the sad for me to be almost normal by the time my sweet daughter was released from homework club. She is worried enough...I don't need to add to her worry by sobbing as she leaves school.
So now I face the coming weeks, armed with a new attack plan, and my support system in tact. Thanks for reading
to the moon and back
Sarah
Quote of the day
I had surgery last week...laproscopic surgery to look for any residual cancer cells. I knew before I left the hospital that my doc had found cells. I think I posted about that last week. Today I had the appointment to talk about what we are going to do about the cells she found. I love how everything turns into a "we." What are "we" going to do. Last time I checked I am the one with this ginormous pain in the ass disease, but still I get to hear everyone say "we." That sounds so bratty. Oh well, I think I have earned at least a little bit of bratty. So "we" decided to cease with the taxotere...since it is OBVIOUSLY not doing diddly to the cells left all up in my abdomen. "We" are going to try a new drug called Topotecan. I actually like saying the name, because I love Topo Chico and I hope this drug Topote-CAN get the cancer out of my body!
This new drug is given once a week for three weeks and then I get a week off. The infusion shouldn't take very long and I think I might try having my infusion in the morning and then head into work for the rest of the day. I haven't tried that yet and the only side effect listed for this drug is fatigue. So getting to sleep in on the day of my treatment might be nice. I left my appointment felling a bit fragile. I was glad to have my mother with me and I was even happier to be picking Robin up from school on our way home. I am blessed enough to work in the same building where Robin goes to school, so I arrived at school right as the staff meeting for my school was finishing up. That was the last straw. I lost it. Seeing all those people who are praying for me...all my friends...my extended work family...was too much. I broke down...pros of losing it at work. I got about 15 amazing hugs...you know the ones...the ones that last at least 30 seconds...where the other person is sincerely trying to absorb some of the pain you are feeling. I got 15 of those. And there it is. I knew if I started typing I would stumble upon my thankfulness. I am thankful for whole body hugs...I think they did absorb some of the sad. They absorbed enough of the sad for me to be almost normal by the time my sweet daughter was released from homework club. She is worried enough...I don't need to add to her worry by sobbing as she leaves school.
So now I face the coming weeks, armed with a new attack plan, and my support system in tact. Thanks for reading
to the moon and back
Sarah
Quote of the day
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