Monday, February 25, 2013

Adding Insult to Injury

Hello friends,
This might turn into a venting type blog....yeah...I feel very venty.  I am super excited that my meds are working...let me just start there.  Without success in the chemo department I would be getting to enjoy weekly thoracenteses, and climbing CA-125s.  So I am very thankful for successful head looks like a pubescent teens face.  This happened with other chemos, but I at least had a covering on my scalp so no one could see it.  It was painful and hard to resolve, but only I knew that the head zits existed.  Now I am bald...and instead of having a lovely round bald head...I have a slightly less lovely bald head covered in huge painful pimples.  

I found a possible solution online.  So now I am washing my head 3 times a day with Hibiclens.  Covering my scalp with a Neutrogena salicylic acid treatment, and then using a cream to cover all the sores.  I hope the internet was right and this will resolve in about a week.  For now I am hiding out at home and keeping my head covered in clean cotton skull caps.  Thank you Tonda for giving me like 60 of the caps.  That means I can keep the nastiness on my head covered with a new clean cap with every washing.  Keeping it covered also helps me keep my hands off my scalp.  I am like a kid with chicken mom says the next step is oven mitts taped to my hands.  

So that is all for today...I have been watching a ton of beauty guru videos on YouTube...and ordering make-up for my unblemished face.  Have a great day friends!

To the Moon and Back,

Pics of the day

This is how I I have a huge angry PIZZA HEAD!

Thursday, February 21, 2013

Well Hello

I've been gone for a bit...and I am sorry for that.  My little family unit is working into the new schedule with my new chemo schedule.  I am on a new treatment that is on for three weeks nad then I get a week off.  It is a little rigorous and I seem to use the week off to rest up for the three weeks on...but it is bringing my numbers down and that is a GREAT thing.  All the chemos give me lots of time to find new cool blogs to I wanted to share some of my new faves with you.  

This lady is adorable and I am totally jealous of her hair.  I love her vintage style and she loves color almost as much as I do.  She is also doing Project I enjoy seeing what she chooses to photograph each day!

So that is all for now I will share another blog next post.  But really check that one out...she is a great writer and has amazing style...IMHO!

To the moon and back,

Wednesday, February 6, 2013

Update...yup another one

So I started my second cycle of Abraxane yesterday.  My CA came down a 1000 points...that's right a thousand points!!!!! My doc says my lungs still sound junky...meaning I might need one more thoracentesis before the Abraxane takes over and dries up the fluid in my plural cavity.

I am breathing so much better.  The thoracentesis they did last week took 1.5 liters of fluid out of my left lung.  I still need oxygen sometimes, but not all the time.  I'll take any improvement I can get where breathing is concerned.  

So for lungs are able to inflate almost like a normal person's lungs.  My CA-125 is coming down.  My hair started to come out in clumps so I am sporting my naked noggin.  I have a halo of baby soft skin and stubble on top.  Things are good!

To the Moon and Back,